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News & Updates

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31 mag 2023

10 Reasons Why School Uniform Matter

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31 ott 2023

The Role of Sports in the Education System

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30 set 2023

Protecting Our Children's Privacy

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30 apr 2023

Spring 2023 High School Curriculum

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31 lug 2023

Recent Classrooms Renovations

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30 giu 2023

New Auditorium Launched in Luanda

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🔎 Cerca una Malattia Rara su Orphanet

L'Associazione LIFE mette a disposizione dei pazienti e delle loro famiglie il collegamento diretto a Orphanet, il principale portale europeo dedicato alle malattie rare e ai farmaci orfani.

Su Orphanet è possibile effettuare una ricerca inserendo semplicemente il nome della malattia e accedere a informazioni scientifiche aggiornate e validate da esperti.

Su Orphanet puoi trovare:

🩺 Descrizione della malattia

🧬 Cause ed eziologia

⚠️ Segni e sintomi

🔬 Diagnosi

💊 Terapie disponibili

💉 Farmaci orfani

🏥 Centri di riferimento nazionali e internazionali

👨‍⚕️ Medici e specialisti

📚 Linee guida cliniche

🔍 Studi clinici e ricerca

👨‍👩‍👧 Associazioni di pazienti

🌍 Reti europee di riferimento (ERN)

📄 Codici ORPHA e classificazione delle malattie rare

🌐 Accedi a Orphanet

Cerca gratuitamente la tua malattia rara e consulta informazioni affidabili, aggiornate e riconosciute a livello internazionale.

👉 https://www.orpha.net

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